Communication health care narratives

Narrative and advocacy (Narrating patienthood ch 2)

Learning from Adam’s story

Narrating patienthood ch 2: Hoffman-Longtin & Hayden: From stories to discoveries: Narratives as advocacy in bio-medical research

Preparation:

Read Narrating patienthood ch 2

Watch the following vid of the chapter co-authors discussing their work:

https://iu.mediaspace.kaltura.com/media/Krista+Hoffmann-Longtin%27s+Personal+Meeting+Room/0_g1q2jdln (Links to an external site.)

View the follwing which show Adam’s continued advocacy for people and research related to brain cancer

Guest Blog: A Patient and Philosopher Goes to the Biggest Brain Tumor Research Conference of the Year

https://cancercommons.org/patient-story/storyteller-adam-hayden-takes-an-active-approach-to-glioblastoma-treatment/

Key discussion questions and exercises:

According to Loftin and Hayden, how might narratives impact medical research itself in important ways?

How is the story about Adams continued work for the NBTS “effective and inspiring/impactful messaging” (include any reflection on the design of the information)?

How is the book chapter structured and how do they use a conversational style narrative (effectively)?

Exercises: Advocacy messaging

Identify a “celebrity” or other credible figure whose narrative experience with a particular condition has had an impact on support for, research relating to, and public awareness/consciousness/behavior/donation in relation to that condition (As Adam has) e.g. through a foundation or media endorsements.

How has/does their personal narrative contribute to advocacy in different and important ways?

If you were working for an advocacy based organization professionally, what would it be, and who’s narratives–celebrety of otherwise–would you want to include in the organizations communication?